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No one congratulated the mother on the birth of her daughter…


A mother could not understand what was occurring when the room fell into total dead, tense quiet after giving birth to her baby. She was utterly scared that her remarks would disturb the peace.

Eliza Jamkochian Bahneman, 36, and her husband Erik, 41, were overjoyed to learn they were carrying a baby in 2018 after 9 months of trying.

 

 

Bahneman was so happy that she shared her pregnant experience with her sister, sister-in-law, and some of her friends. They all had children at the same time and were all due around the same time. The expecting mother eagerly anticipated the arrival of her miracle child into this wonderful world.

Of course, the baby girl eventually made the decision to emerge from the security of her mother’s womb a month early than expected. Isabella, sometimes known as “Bella,” was formally born in October 2018.

After a total of 12 hours of difficult labor, this baby was delivered weighing 512 pounds. What was supposed to be a joyful occasion, however, gradually subsided.

 

 

Disconcerted, Bahneman noted a murky silence as murmurs filled the space. She said as she reflected on the time:

“Why isn’t anyone wishing me well? Why is my spouse feeling so uncertain and afraid? My mom won’t even look at me, why?”

Following Bella’s transfer to the NICU, numerous testing and assessments revealed that the infant had Treacher Collins, a rare genetic condition. The face bones don’t grow properly as a result of this.

 

 

Isabella was born with numerous problems as a result, including hearing loss and a restricted airway. So began the difficult journey filled with operations and hurried hospital visits because of crises.

Bella had to go to numerous treatment sessions. This includes speech treatment, occupational therapy, and music lessons for her hearing impairments.

After two years, Isabella seemed to be continuing to grow strongly. However, because of her illness, this 2-year-old was now now experiencing negative social reactions, with people viewing her only on the basis of how she seemed. But the mother said:

“All of us have unique characteristics, some of which are more obvious than others. If everyone in the world were the same, the world would not be as vibrant.”

The mother wants to continue teaching and bringing attention to the Treacher Collins condition. In general, Bahneman hopes to encourage others to show compassion to people with this illness. After all, this is the only thing anyone ought to do when they encounter someone unusually attractive.

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